Youngstown community joins the fight against cystic fibrosis

« Boardman Neighbors


The Northern Ohio Chapter of the Cystic Fibrosis Foundation will host the 20th annual Mahoning/Trumbull Great Strides Walk as part of the largest national event to raise funds and awareness for cystic fibrosis on May 19, at the Masters Pavilion in Boardman Park.

Registration begins at 1 p.m. and the walk begins at 2 p.m. There will be food, entertainment and a post-walk victory party with an ice cream sundae bar provided by Handel’s Ice Cream.

Cystic fibrosis is a rare, genetic disease that progressively limits the ability to breathe and ultimately causes premature death.

“Together with our community, we are transforming cystic fibrosis from a deadly childhood disease to the best story in medicine,” said Colleen Novosel, co-chair of the Mahoning/Trumbull Great Strides Committee. “When the Cystic Fibrosis Foundation was first founded, children with cystic fibrosis typically did not live long enough to attend elementary school. When my daughter, Chrissy, was diagnosed 43 years ago the life expectancy was only 18 years old. Today, people with cystic fibrosis are achieving milestones like going to college and starting families of their own. We are making incredible progress, but we can’t do it alone. We invite everyone in the Mahoning/Trumbull area to help us make ‘CF’ stand for ‘Cure Found.’”

In 2018, the foundation spent an estimated $188 million to uncover new treatments for cystic fibrosis and to support the delivery of high-quality, specialized care for people with the disease — the most in the organization’s history. This year, the foundation hopes to raise $37 million through Great Strides to help advance its mission to find a cure and empower all people with cystic fibrosis to live full, productive lives.

To get involved in Great Strides and help fight cystic fibrosis, call the Northern Ohio chapter at 216-901-2873 at or visit http://fightcf.cff.org.

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