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Proceeds to benefit Families of Spinal Muscular Atrophy



Published: Mon, July 29, 2013 @ 12:05 a.m.

By William K. Alcorn

alcorn@vindy.com

BOARDMAN

The second annual Aubrey Grace Lyden Memorial Golf Scramble to benefit Families of Spinal Muscular Atrophy will take place from 8:30 a.m. to 6 p.m. Saturday at Lakeside Golf Course, 2404 S.E. River Road, in Lake Milton.

The cost of $260 per team includes breakfast, lunch, dinner and a T-shirt. To attend the event, visit www.fsma.org/aglouting and click the “Register” button. To make an online donation to FSMA in Aubrey Grace’s name, click the “Donate” button. Call Sean Lyden, Aubrey’s father, at 330-565-6190 for information.

Additional T-shirts will be available for purchase. Also, tickets may be purchased for a charity silent auction with baskets and prizes.

The golf scramble is in honor of Aubrey, who died of spinal muscular atrophy on Easter Sunday morning, April 24, 2011, before reaching her first birthday.

Spinal muscular atrophy, the No. 1 genetic killer of children under age 2, is a condition that robs the body of voluntary and involuntary muscle movement.

FSMA is a nonprofit organization, and its goal is to find a treatment and cure for the disease.

After her death, Aubrey’s parents, Sean and Dannete Lyden of Boardman, vowed to help FSMA raise the funds to search for a cure for SMA.

“There is a reason she was here. We didn’t want her to have died for nothing. We knew we wanted to raise awareness about SMA and money for research. We’d like to see doctors routinely test for SMA,” her parents said.

Last year’s Aubrey Grace Lyden Memorial Golf Scramble, with a goal of $10,000, raised more than $24,000. The goal this year is $15,000.


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